Expansion of sharing Posted By: David Kennedy - Sep 2, 2011Tool/Resource: NITRC Community Request for Information (RFI): Expansion of sharing and standardization of NIH-funded human brain imaging data See http://grants.nih.gov/grants/guide/notic... Purpose: This Request for Information (RFI) is for information and planning purposes only, and should not be construed as a solicitation or as an obligation on the part of the Federal Government, the National Institutes of Health (NIH), the NIH Blueprint for Neuroscience Research (Blueprint), and/or the National Institute on Drug Abuse (NIDA). The NIH does not intend to make any awards based on responses to this RFI or to otherwise pay for the preparation of any information submitted or for the Government's use of such information. The Blueprint Workgroup on Neuromaging Data-Sharing and the Blueprint Lifespan Human Connectome Project Team are seeking input from the scientific community, health professionals, patient advocates, community-based organizations, students, and the general public about the administrative and technical issues involved in removing barriers to the sharing of human brain imaging data collected using NIH support. This input may include (but is not limited to) issues or potential solutions related to image hosting, as well as the adoption of standardized scanning procedures, imaging protocols, phenotypic characterization, and data formats. Of particular interest is input regarding human-subjects protection and confidentiality issues. Definitions: Standardization, for the purpose of this Notice, is defined as the joint adoption (across multiple laboratories and institutions) of either: a) specific neuro-image acquisition parameters, b) image processing processes after image collection and reconstruction, c) specific instruments for collateral phenotypic characterization, d) data formats and definitions, e) data de-identification, or f) potential post-facto algorithms or schemes for harmonizing data collected under different parameters or data definitions. Sharing, for the purpose of this Notice, is defined as either the actual transfer of brain image data from the laboratory infrastructure of initial data collection or simply as enabling dynamic access to image data that remains stored at the institution of its collection. In either case, image data would be annotated with demographic and other phenotypic information in sufficient detail for secondary data analysis. Transferred data could be sent directly to a particular laboratory (either through a centralized referral hub, or bilaterally on request), or alternatively furnished to one or more common repository infrastructures. Responses will be accepted until October 14, 2011 via email to: James Bjork, Ph.D. at jbjork@mail.nih.gov. Please mark your responses with this RFI identifier NOT-DA-11-021. Reponses are expected to be no longer than approximately 2000 words. |
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